By posting on the map you agree to the below terms.

 

Consent Video

 

 

 

Consent Text

What are we doing?

This research is being conducted by researchers from the University of British Columbia and the BC Centre for Employment Excellence.

We are developing a website that collects information about disabled people’s experience with employment.

This website is an online website that will allow people to share positive stories about self advocates’ experiences of inclusive (good, paid, enjoyable) employment.

Through sharing these stories on the website, people like employers, family members, support workers, and other self advocates can learn about good, positive employment where people feel included and valued.

We want to understand more about people’s experiences looking for work and finding employment. We want to learn what works well for people at their workplaces as well as learn how to support disabled people in finding meaningful work.

For this part of our research, we need 35 examples to start the database for the website. You have been asked to participate because you have information to share about a good work experience.

Why use examples?

Next year, 2015, people across British Columbia will be able to add their stories of positive employment experiences.

When people view the website, it will very helpful for them to see some examples. This will be valuable because then they can see what kinds of things people share and this will give them an idea of what kind of information they can share.

What you are being asked to do?

We will be working with you to develop a way to share your experiences of positive employment. This might be through a short video (1 – 3 minutes), an audio recording (1 – 3 minutes in length), pictures (for example, a picture of where you work), or a short typed description.

It is your choice how you would like to share your experiences. A member of our research team will help you make decisions and will be able to help you make a video or an audio file, or take pictures, or write something short about your work experiences. Or you can have a friend or family member you trust help you too.

”What do you like about your job?”

The question that we would like you to answer is, “What do you like about your job?”

You will be given a gift of $15 for participating in this research project.

It is important to note that any digital information (e.g., pictures, video) that includes images of other people (for example co-workers or other members of the public) cannot be shared on the website without these other people’s consent.

We need to protect people’s privacy. A member of the research team will make sure that group pictures are not included on the website unless they all have given permission.

What are some potential risks?

The information that you share about your employment will be added to our website and other people looking at the website might see it.

We will work with you and with the support people in your life to make sure that the information that is added to the website is safe for you.

There is also a website developed by CLBC that explains ways to be safe online. You can find that information here.

If at any time you would like to have your information taken off the website, either you can do this yourself or someone will assist you to take the information off the website.

We do not think there is anything in this study that could harm you or be bad for you. But, if something makes you feel uncomfortable or upsets you, please let one of the study staff know if you have any concerns. We will find someone (like a counsellor or a support person) for you to talk to privately if you want.

What are some of the potential benefits?

This research project is of importance to people with disabilities who are employed or want to be employed.

Being involved in this project will allow for your perspectives and knowledge to inform the development of online map.

Overall, we hope the findings of this research will teach us more about creating inclusive (good, positive, paid) work experiences for disabled people in BC and will teach us more about promoting positive experiences and overcoming potential barriers to employment.

We will be analyzing these stories (learning from the stories) so that we can share this information through written reports to Community Living British Columbia, the Ministry of Social Development and Social Innovation, and the community.

We will be giving public presentations to both university and community audiences (e.g., Inclusion BC Annual Conference), and we will write about the findings of this research in journals.

We will also post the report on the Centre for Inclusion and Citizenship website (http://cic.arts.ubc.ca ) along with a plain language version in the summer of 2015.

Will the information you share be private?

This project uses a public website (people can look at the website and see what is on it). That means that information you add to the map will not be private (other people can see what you add to the website).

The website is kept on UBC server computers and a member of the research team oversees the maintenance of the website (how the website works).

In order to add information to the website, you need to become a registered user. The help file on the website explains how to do this. Only the person that logs on the website with this information can add, change or delete your information.

You will receive an email every year asking if you would like the information that you added to remain on the map or if you would like to change or delete the information.

If the map ceases to exist (stops), you will be sent an email informing you of the change.

Stopping your participation or choosing to remove your information from the website

Your participation is entirely voluntary (it is your choice) and you may refuse to be involved or stop your involvement at any time.

You can choose not to participate, or if you do you can change your mind you can stop being a part of this project.

If you decide you want to stop at any point, that’s OK – no one will get into any trouble. If you choose not to participate or if you choose to stop, this will not affect the services and supports you receive.

If you change your mind about having your information on the website, you can take it down or you can change it. We will find someone to help you with that if you want.

If the project ceases to exist (stops), you will be sent an email to inform you about this change.

If you choose to take your information off the website before our research, your information will not be included in any of the reports.

However, if the research has been completed, it will not be possible to remove your information from the reports and presentations.

No identifying information will be shared when we share the findings in the written reports or presentations without your permission.

Contact for information about the study

If you have any questions or concerns about anything to do with the project you can ask the researcher, Rachelle Hole, at 250-807-8741 or email – This email address is being protected from spambots. You need JavaScript enabled to view it. or the Project Coordinator, Sara Lige at 250-807-9460 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

Contact for concerns about the rights of research subjects:

If you have any concerns or complaints about your rights as a participant and/or your experiences while participating in this study, contact the Research Participant Complaint Line in the UBC Office of Research Services toll free at 1-877-822-8598 or the UBC Okanagan Research Services Office at 250-807-8832.

It is also possible to contact the Research Complaint Line by email (This email address is being protected from spambots. You need JavaScript enabled to view it.).